Angioma Alliance is a non-profit patient-directed health organization created by people affected with
cavernous angiomas (cerebral cavernous malformations). Our mission is to inform and support people affected
by cavernous angiomas while facilitating improved diagnosis and management of the illness through education
and research. Our activities are monitored closely by a scientific advisory board comprised of leading cerebrovascular
neurosurgeons, neuro-geneticists, and neurologists.
The individuals you see scrolling at the top of this page are all affected by cavernous angiomas. Cavernous
angiomas in the brain and spine do not discriminate: people of any age can be faced with symptoms that may
include seizures, chronic pain, and physical or cognitive deficits similar to those caused by strokes.
Our website provides:
Information about the illness with in-depth articles on topics of special interest
A quarterly newsletter providing timely information about cavernous angioma
Networking and support resources
Ways people can become involved and help drive research
Angioma Alliance does the following:
sponsors national patient conferences
hosts a DNA/Tissue Bank and Patient Registry to support research
distributes patient education materials to neurosurgeons, neurologists, and genetics
professionals
sponsors scientific workshops that bring together the research community
sponsors an annual Neurology Residents’ Award to increase physician education
and improve patient care
works with the National institutes of Health and other government agencies to support
cavernous angioma research
works with the media to increase public awareness of the illness
supports the formation of independent international cavernous angioma support
organizations
View our video about Cavernous Angioma and Children.
You can help our activities by sending donations to:
Angioma Alliance
142 W. York Street
Suite 708
Norfolk, VA 23510-2015
USA
Or donate using a credit card with our Paypal connection.
Paypal's low cost to us means that more of your contribution can go directly toward
the work of Angioma Alliance. We are a non-profit 501(c)3 tax exempt organization.
All contributions are tax deductible.
