Angioma Alliance is becoming more actively involved in facilitating cavernous
angioma tissue donation to research laboratories. Research laboratories have
an immediate and long term need for cavernous angioma tissue that has been
surgically removed. Currently, labs are using the tissue to gain understanding
of the process of cavernous angioma formation and hemorrhage. This is important
work that will have an enormous impact on future treatment options for this
illness.
Angioma Alliance has published descriptions of the individual research projects
in the US that require cavernous angioma tissue on our
Studies Seeking Participants page. We hope this will
aid you in choosing a lab to receive your tissue donation. You do not have to have
the familial form of the illness to donate. We would like to encourage anyone facing
surgery in the US who would like to donate their angioma to call us at our new
toll-free number, 1-866-HEAL-CCM, so that we can help to make arrangements. Your
donation could make a big difference in the pace of research progress.
CCMinfo@Angiomaalliance.org
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