Living with Uncertainty - Alison Freehling, January 22 2003

Always - Christian Fisher, June 17, 2003

Holding Down the Fort - Lauren Ward, May 27, 2004

Rare Illness Strikes Latin Americans - By Librada Martinez, La Prensa Hispana, April 27, 2005

Heroes Among Us – by Page Bishop, The Williamsburg Health Journal, August 2006

Heirs to a Rare Legacy in New Mexico – By Ben Daitz, The New York Times, September 4, 2007