Max's Story


From:"Melanie McEndree" Mmcendree730@aol.com
Sent: July 1, 2003

My son Max was diagnosed with AVM's DEC 18 TH. 2003. He is 3 yrs old. He was getting a base line MRI done, due to the fact that his father has AVM's.Max had a 50% chance of inheriting this disease.

That day we found out the odds were not in our favor. He has 4 total. The first thing I did was contacted a neurologist and a neurosurgeon with help from his primary doctor. The first appointment I was able to get was with The neurosurgeon, He looked at his MRI and confirmed that he had multiple malformations. He said one had bled out months before. He said he was not going to do anything though. Other than the fact that we knew he had these Avm's there was nothing else wrong. So, I made an appointment to see the neurosurgeon in about 2 yrs.

Well, I ended up seeing him a lot sooner. On June 2nd 2003. Max had suffered 4 seizures in one day. We traveled to 3 hospitals total that day. Finally, we ended up at Children's hospital in Pittsburgh. That is where his neurosurgeon is based. Max was in the hospital for 4 days. The same malformation that bled out months earlier bled again. It was after finding this out his doctor wanted to schedule to remove this and another one right next to it out.

On June 27th 2003, Max underwent brain surgery. It went extremely well. His surgery was scheduled for 5 hours it only took three hours. His doctor was brilliant. His Name is Dr. David Adelson. I would defiantly suggest this man to any parent whose child has to undergo brain surgery. You can find out more about him if you go to the web site for children's hospital of Pittsburgh.

Though it only been a few day's now since Max's procedure, he is doing very well. If there is any parent that would like to get in touch with me contact me at Mmcendree730@aol.com.

Thank you for taking the time to read Max's story. God Bless

Melanie McEndree