You've Got a Hole in Your Head!



From: "Cindy Smith" spring54@insightbb.com
Sent: July 29, 2008

You've got a hole in your head!" That's what I heard from my doctors after suffering a TIA in June of 2004. "It's something you were born with and it's not causing a problem," they said. I have never been the same since that day. Every day since, I have struggled with some kind weakness or other symptom.

I'm limiting my story somewhat due to the fact that computer work wears me out. What an enlightenment to discover Angioma Alliance! My friend saw the "Mystery Diagnosis" TV show and told me about it. Like so many of you, it took forever to receive a correct diagnosis. I was told that I have MS, partial seizures, Lyme Disease, Myosthenia Gravis (sp?), stress, B12 difficiency, clogged carotid arteries, a low-grade tumor, and probably others that my slow mind won't let me remember now.

Also like you, I've experienced the agony of waiting for doctor's replies, test results, and the horrible fear of wondering, "What's wrong with me?" In 2005 I had a major bleed which left me unable to work as a middle school teacher. I had returned to work in 2004 after the TIA, but was limited due to its effects. Then when I started school in Aug. 05, I only taught 5 days before I was stricken. That began my years-long search for the answer to my questions.

I'd like to up-date this later with more details, but for now, I'm including my e-mail address for your comments and suggestions. I'd like to know if anyone else has these puzzling symptoms:

  • Overwhelming and complete exhaustion- I'm only good for about 3 hours a day or maybe 5 if I push myself. I can look normal and do normal things and then I "hit the wall" and have to go to bed.
  • Facial, fingers and toes numbness on the right side
  • Blurry vision
  • Muddy memory, can't think of the right words

    My angioma is in the left frontal brain lobe and spreading toward the center.

    Cindy Smith