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Angioma Alliance Member Stories

Short Stories from Awareness Month Are Located Here


sorted by date added  

Cavernous Angioma, Temporal Lobe Epilepsy - and One Adventurer's Unexpected Journey Down the Rabbit Hole - J. Goodman - August 24, 2016

Her hospital stay was her "30-year tune-up" - Nichole Martinez - February 19, 2015


"I felt out of control, like my mind was not doing what it was supposed to." - Danielle Farrant - September 10th, 2014

 

"I couldn't remember anything from most of the night." - Laura Gardner - August 4th, 2014

 

"I was 52 when my whole existence as I knew it changed forever..." - Lori Ann Moreno - July 28th, 2014

 

"6 years old, 4 brain surgeries and 5 cavernous angiomas removed...so far" - Jocelyn - July 21st, 2014

 

"I may develop more in time. I say, "Bring it on!" - Dercelia Ortiz - June 30th, 2014

 

"I thought to myself, am I crazy?" - Denise O'Rourke - June 24th, 2014

 

"Recovery was not easy. I had to learn to walk again..." - Jodi Felitti - June 24th, 2014

 

"I started to believe the symptoms were just in my head." - Kasey Brock - June 22nd, 2014

 

"I had grown tired of taking the 'wait and see' approach." - Jeff Jin - June 22nd, 2014

 

"Too numerous to count - Living with 35+ cavernous angiomas" - Grace Gingrich - June 19th, 2014

 

"Make it a Great Day or mGrByd" - Linda Fuchser - June 18th, 2014

 

How I Found Out There's a Raspberry in My Brain - Karen S - December 21, 2013

 

My Cavernous Malformations - Bob Annecone - May 24, 2013

 

"What Kind of Drugs Are You Taking?" - Andy - April 2, 2013

 

My Mother's Story - Carlos Freitas - March 27, 2013

 

Jeffrey's Story - Herma Bristol - April 7, 2011

 

Our Family Curse - Does It Have A Name? - Tracey Jennings - February 26, 2011

 

We Must Also Face Reality - Leo Myzick - September 17, 2010

 

Brainstem Surgery at Age 61 - Ida Gertenrich - September, 26, 2009

 

Allison's Story - Allison Ruggles - June 26, 2009

 

The Day My Health Played Havoc On Me - Nicole Henrio - May 3, 2009

 

Laramie's Story - Doug Gegax - March 2, 2009

 

You've Got a Hole in Your Head! - Cindy Smith - July 29, 2008

 

Tamara' Story - Tamara  - July 9, 2008 

 

Lee Rashkind's Story - Lee Rashkind - July 2, 2008 

 

Spinal Cord Cavernoma - Miri Greidi - Updated June 30, 2008 

 

Spinal Cord Cavernous Malformation and University of Miami - Heather - June 2, 2008 

 

Answering the Hardest Question of All - Connie Lee - May 6, 2008 

 

Here's My Story... - Amy Jagemann - Updated January 2008 

 

My Rollercoaster Ride - Janet - Updated January 2008 

 

Cavernous Hemangioma of Brainstem - Alicia Yoos - January 14, 2008 

 

Rachel Hart's Story - Rachel Hart - December 13, 2007 

 

Cavernous Angioma Hemorrhaging in My Brain Stem - Rivky Ludzker - December 6, 2007 

 

Ready for Surgery! - Jordan Rosner - June 19, 2007 

 

Sean's Story - Tasha Scott - Updated May 2007 

 

Spinal Cord CA - Maureen Weinberg - April 4, 2007 

 

My Story with a Spinal Angioma - Angeline Henry - February 12, 2007 

 

CM in Brainstem - Larry Chavarria - January 13, 2007 

 

Brainstem Cavernoma - Suzy - January 9, 2007 

 

Shelly Rohe's Story - Shelly Rohe - November 18, 2006 

 

Story of My Diagnosis - Jennifer Bobin - November 12, 2006 

 

Gamma Knife treatment, 23/24 July 2006. - Andre - August 8, 2006 

 

Accept The Changes - Chris Kranenberg - July 10, 2006 

 

We Won't Go There Today - Jay Scruggs - November 17, 2005 

 

Small Cerebral Hemangioma and Seizures - Gil Pinheiro - November 17, 2005 

 

My Story of Spinal Cavernous Angioma - Tori Smalley - April 6, 2005 

 

"That's From Stress..." - Karen C. - March 31, 2005 

 

Horror Movies Don't Begin to Compare... - Erin - March 19, 2005 

 

Appreciating My "Clear Vision" Days - Jen Bartels - January 29, 2005 

 

Pepperoni Pizza--Hold the Angiomas - Jack Hoch - January 21, 2005 

 

Gabriel & Diego's Story - Jennifer Guanco - December 11, 2004 

 

Policarpo Gonzalez del Valle y Herrero's Story - Policarpo Gonzalez del Valle y Herrero - September 18, 2004 

 

Story from Brazil - Roberto - June 25, 2004 

 

My Doctors Didn't Know What It Was - Chris Safford - January 29, 2004 

 

I've Had an Operation Too! - Olga Cervone - November 26,2003 

 

Left Frontal Lobe Angioma, with Seizures - Gustavo Rodriguez - November 14, 2003 

 

"Go Home! There’s Nothing Wrong With You!” - Tingling Fingers to Brainstem Surgery - Harry H. Chefitz - October 7, 2003 

 

My Experience w/Cavernous Malformation of the Spine - Norvina N. Sage - October 7, 2003 

 

Cavernous Angioma Surgically Removed from Brainstem - Carol Michael - September 25, 2003 

 

Removal of Cavernous Haemangioma - Emma Ramsay - August 22, 2003 

 

My CCM Story  - Patti Gilstrap - August 14, 2003 

 

Angioma Caused Seizures - Renee Miller - August 1, 2003 

 

Thank God! - Leslie Kinnee - Michigan - July 25, 2003 

 

Max's Story - Melanie McEndree - July 1, 2003 

 

Karen Lowry's Cavernous Angioma Story - Karen Lowry - July 1, 2003 

 

The Choice Was Mine - Judith Marshall - Glasgow, Scotland - April 8, 2003