Living with Uncertainty - Alison Freehling, January 22 2003
Always - Christian Fisher, June 17, 2003
Holding Down the Fort - Lauren Ward, May 27, 2004
Rare Illness Strikes Latin Americans - By Librada Martinez, La Prensa Hispana, April 27, 2005
Heroes Among Us – by Page Bishop, The Williamsburg Health Journal, August 2006
Heirs to a Rare Legacy in New Mexico – by Ben Daitz, The New York Times, September 4, 2007
I Had a Stroke at 21 - by Zoe Ruderman, Cosmopolitan Magazine, October 2008
A father-son respect thing - by Maureen Lynch, McHenry County Sports, December 2008
Allentown twins' fight against rare vascular disease is a good yarn - by Marion Callahan, Allentown Morning Call, January 12, 2009