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Research

Angioma Alliance is actively involved in supporting research and providing the resources necessary for laboratories to conduct their studies:

  1. Angioma Alliance has created its own DNA/Tissue Bank and Patient Registry to help our researchers find better treatments and possible cures for this illness. Tissue is donated from cavernous angiomas that are removed surgically. DNA is extracted from blood donations. Because this bank and registry are held by Angioma Alliance, many researchers at many labs are able to use the donations of our members. A single individual’s DNA or tissue may become part of research that is happening in labs across the US, and eventually, the world. This page provides the latest information on the status of the tissue/DNA bank and registry and instructions on how to join us in this very important endeavor.

  2. We sponsor an annual Pathobiology of Cerebral Cavernous Malformations Scientific Workshop that brings together many of the key players in the CCM research field to discuss their latest research in an open, friendly, and relatively informal atmosphere.  This workshop is not open to the public.

  3. Angioma Alliance has been involved in collaborations with laboratories in the United States and throughout the world.  We also work closely with the National Institute of Health to encourage their assistance with research funding.

  4. We have made available a list of laboratories that are seeking participants in ongoing research. 

  5. Our newsletter and website section on Symptoms and Treatment provide the most up-to-date information about cavernous angioma research. In addition, we have added a page to explain the relevance of animal research.