About This Site
Cavernous Angioma Information
Genetics of Cavernous Angioma
Questions to Ask Your Doctor
glossary
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press room
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Venous Angioma
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Things for the Hospital
Caregiver Information
Emotional Support
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Pregnancy & cavernous angioma
Children with cavernous angioma
Cavernous Angioma and School
Patient Tissue/DNA Bank & Registry
Explaining Animal Research
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About Angioma Alliance
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News

Angioma Alliance produces a newsletter every 3-4 months that provides information about latest research findings, Angioma Alliance activities, and other feature articles. Previous newsletters can be found by selecting the Newsletter Archives menu choice. To receive an email announcement of the publication of each newsletter, please sign up for our email Mailing List.

The Angioma Alliance Press Room consists of articles written in other publications about the cavernous angioma experiences of our members. We encourage you to help publicize this illness in order to achieve a greater public awareness and understanding of cavernous angioma. One method is to contact the Health editor or Features editor at your local paper and offer to share your experiences for a feature article. An alternative is to write a letter to the editor of your local paper giving basic information about the illness (see our Essential Information section for some facts) and providing contact information for Angioma Alliance. A third alternative is to wear the CCM awareness pin and carry our information cards to hand out when you are asked about the meaning of the pin.