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Mission
It is our mission to inform and support individuals affected by CCM while facilitating
improved diagnosis and management of the illness through education and research.
Vision
A permanent cure for CCM
Goals
Inform/Support:
To use all available means to disseminate
information about CCM to those affected and their families, as well as establish
a caring community to provide support.
Research:
To advocate, facilitate and participate in CCM
research in the pursuit of a complete understanding of the disease and, ultimately,
a cure.
Physician Education:
To ensure that all appropriate physicians
are aware of CCM and have ready access to the latest information to provide an
accurate diagnosis and effective treatment.
Public Awareness:
To heighten public awareness of CCM to
increase understanding, acceptance and funding for research and services.
Funding:
To build and sustain a broad base of diverse
funding sources who will contribute the financial support needed to achieve
our mission and goals.
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