Angioma Alliance

the accurate, up-to-date information and patient/family support provided through our website, patient conferences, peer support program, brochures, and toll-free number.
the physician education provided through our Neurology Residents’ Award and our exhibits at medical conferences.
the research efforts aimed at finding a permanent cure for cavernous angioma through our DNA/Tissue Bank, Patient Registry, annual Scientific Workshops, referrals and assistance to major studies, and work with the National Institute of Health and Congress.

How to Make a Direct Donation

Send donations through the mail to:

Angioma Alliance
142 W. York Street
Suite 708
Norfolk, VA 23510-2015
USA

We can accept checks, money orders, and Visa or Mastercard donations. For credit card donations, please include your card number, the card expiration date, the amount of your donation, and your billing address.

Or donate online using our Paypal connection.

Paypal's low cost to us means that more of your contribution can go directly toward the work of Angioma Alliance.

We are a non-profit 501(c)3 tax exempt organization. All contributions are tax deductible.

Each donation of $10 or more will come with a CCM lapel pin thank you gift. Like the ribbons associated with other illnesses, our “little red guy” pin is a wonderful way to increase awareness of cerebral cavernous malformation (CCM), our little known illness. Increasing public awareness can go a long way toward increasing research funding and improving the quality of life we all lead. Each pin comes with cavernous angioma business-size information cards that can be handed to anyone who might have questions.

Estate Planning

As you are working with your estate planning professional, please consider including Angioma Alliance in your will. Your lawyer may need to know the following:

Address:

Angioma Alliance
142 W. York St, STE 708
Norfolk, VA 23510

Tax ID Number: 02-0600697

Phone: 757-623-0615

Email address: Info@AngiomaAlliance.org

Donating Stocks and Mutual Fund Shares

It is possible to transfer ownership of equities or mutual fund shares directly to Angioma Alliance. If you choose to do this, you will not have to pay capital gains tax on the increase in value of your shares. You will also receive a charitable deduction for the full amount of the donation at the time of the transfer. Please ask your investment advisor or tax consultant for details.

Matching Gifts

Many employers have matching gift programs that allow you to increase your donation. Some employers require a charity be registered as a recipient with them. Please check with your employer’s appropriate department (payroll or human resources, typically) to see if a registration is needed and if we are already registered. If not, please send us the appropriate forms and we will take care of the rest.

Donating While Shopping or Selling Online

Angioma Alliance Marketplace

Angioma Alliance offers a variety of awareness and educational items for purchase either online or by mail. The awareness items you find in the Angioma Alliance Product Store not only help to support our work financially, but also help to increase public understanding of this illness. The Angioma Alliance Bookstore provides a link to online sellers that offer books of interest to our members; some of these donate a percent of their sales to us.

Igive.com

www.igive.com is a website that serves as a portal to hundreds of retail sites and gives us money every time you buy from one of them. The first time you visit igive.com, please register and list Angioma Alliance as your charity. Then, every time you shop, go to igive.com first to get to the store you want. A percentage of what you buy will be sent to us at no additional cost to you.

It's that easy. We've raised over $1000 through igive.com - it's a great way for you and your friends and family to help everyone with cavernous angiomas.

GoodSearch.com and GoodShop

The search engine www.goodsearch.com donates one cent to us each time you search the internet from their website. GoodSearch also has an associated shopping portal similar to igive.com called GoodShop. This is a site to bookmark and add to your Favorites.

Pampered Chef

Rachel Hart and her sister Shayna Dunn are donating their proceeds from online Pampered Chef sales to Angioma Alliance. Angioma Alliance will receive 20% of the sale price of any item you buy. These are high quality kitchen products that make cooking fun.

Please go to www.pamperedchef.com to view the Pampered Chef line of products, but DO NOT PLACE YOUR ORDER ONLINE. To benefit Angioma Alliance, please contact Rachel at rachel_hart10@live.com and she will give you ordering instructions.

Ebay GivingWorks and MissionFish

A way for you to use Ebay to help Angioma Alliance is to register as a seller with MissionFish. This allows you to designate a percentage of the sales price of items you sell as a donation to Angioma Alliance (minimum is $5). You keep the remaining percentage. Your donation through Ebay Giving Works is entirely tax deductible.

Other Online Sales

If you are a sales representative for a business like Pampered Chef and would like to donate proceeds from online sales, please let us know and we will add your ordering information to this page and post it on our Community Forum.

Involving Your Circle

Most of our individual donations come from family and friends of our affected members. These loved ones understand the importance of Angioma Alliance both as a support for those who are currently affected and as a force working for a better tomorrow through research and education. There are a number of ways to encourage giving among your loved ones.

Birthdays and Special Occasions

A number of our members have asked loved ones to make a donation to Angioma Alliance in lieu of giving birthday or holiday gifts. When a donation is made to Angioma Alliance listing an honoree, we make sure to inform the honoree and list the gift in the Memorial and Honorarium Donations section of our newsletter.

A Direct Appeal Letter to Family and Friends

If the work of Angioma Alliance has become meaningful to you, we ask that you spread the word to your family and friends. This can be done through a brief letter, perhaps enclosed within a holiday card. We have developed a template in Microsoft Word that you can modify. If you need a different file type or a hard copy, please let us know and we will send this on to you. We can also send you donation return envelopes to include with your letter or card. While this may feel uncomfortable, please understand that family and friends are often feeling that they need to help you in some way, but aren’t sure how – you are giving them a simple and very powerful way to do so.

Memorials

It is common for many people to designate a charity for memorial donations in lieu of flowers at the passing of a loved one. If you choose Angioma Alliance as the charity, we will list each donation in the Memorial Donors section of our newsletter and send a letter notifying you of donations made in your loved ones memory. This is a fitting and meaningful way to remember a loved one.

Brunswick Brainy Bowling

In May, 2008, Brunswick Bowling will begin sponsoring bowling tournaments to benefit Angioma Alliance. The first event is being organized by Angioma Alliance fundraising special events coordinator Anjoleen Baca and is being held at five lanes in the Atlanta area. If this event is a success, we will have a model for use at Brunswick Lanes throughout the country. The events will be relatively simple to put together – if you have Brunswick Recreation Centers in your area (you can check at http://www.bowlbrunswick.com/) and would like to be involved in future events, please let us know.

Organizing a Special Event

We encourage members to host public fundraisers not just to raise money, but also to raise awareness. Our members and friends have hosted fundraisers including an adult Halloween party, a bike-a-thon/silent auction/raffle, wine auctions, a wine tasting party, a school district rummage sale, and a benefit concert. Kids’ school fundraisers have included selling lollipops, organizing a rock-a-thon (rocking chairs, not music), and sponsoring a staff/teacher casual day. Your imagination and energy are the only limits to what we can do.

If you are planning a fundraiser, please let us know ahead of time. Most states require that we register as a charity before we are allowed to collect funds, and the registration process can take a few months. Also, we need to work with you to make sure that we have all gifts and donations recorded properly for our financial records. Finally, we may be able to make your job easier with our resources from past fundraisers: give-away items, press releases, or forms, for example.

See our newsletter for a list of upcoming special events.

Corporate Grants

Many corporations offer grants to non-profit organizations and give preference to organizations that are important to their employees. Please check with your or your spouse’s Corporate Giving department to see if this is the case. Some corporations also have associated grant-making Foundations. A letter of support from an employee may help us as we apply for these grants.

Gifts in Kind

At times, Angioma Alliance has need of equipment, printing, or other items to support our work. When we have a need, we will post it on our Community Forum and in our Newsletter. The fair market value of the donated items is tax deductible.

Also, if you hear of an upcoming auction or fundraiser being held by another member on behalf of Angioma Alliance, please feel free to support it with contributions you think may be appropriate.