Building community is an essential part of the mission of Angioma Alliance. Angioma Alliance offers a number of opportunities for getting to know others with cavernous angioma to share information and support.

Community Forum

We host a Community Forum that has a message board format. This is a great place to ask questions and share experiences.

Click Here for more information on the Community Forum.

List Server

We host an email list server that allows you to communicate with a group of subscribers via email. You must subscribe to the list server before posting a message. Each email you send to the ccm.listserv@lists.angiomaalliance.org email address will be delivered to all of the subscribers. Use the List Server Information menu choice to get more information about subscribing to and using the list server.

Stories

Our members are able to submit their cavernous angioma stories in English, Spanish, and Portuguese on the site. This allows visitors to read about other’s experiences without looking through the forum or list server archives. Choose Stories from the menu to read these stories and learn more about submitting your own.

Family Conference

Angioma Alliance host family conferences that provide an opportunity for members to meet each other face-to-face and to learn an incredible amount about cavernous angioma through presentations given by the nation’s top experts on the illness. The Upcoming Conference menu choice gives more information about our plans.