About This Site
Cavernous Angioma Information
Genetics of Cavernous Angioma
Questions to Ask Your Doctor
glossary
Community Forum Instructions
Community Forum
Chat Information
List Server Information
Your Stories
Support Contacts
Newsletter
Family Conference
press room
Research Funding
Genetic Non-discrimination
Genetic Testing
Diagnostic Imaging
Brainstem Cavernous Angioma
Hemorrhage
Radiosurgery
Spinal Cavernous Angioma
Temporal Lobe Epilepsy
Venous Angioma
Preparing for Surgery
Things for the Hospital
Caregiver Information
Emotional Support
Rehabilitation
Cognitive Changes
Vocational Rehabilitation
Pregnancy & cavernous angioma
Children with cavernous angioma
Cavernous Angioma and School
Patient Tissue/DNA Bank & Registry
US Studies
International Studies
General Resources
Disability Resources
Financial/Insurance Resources
About Angioma Alliance
Mission and Vision
Board of Directors
Scientific Advisory Board
Volunteer Opportunities
Financial Statements
Angioma Alliance Product Store
IGive
Bookstore
Make a Donation

Book Store
Angioma Alliance Bookstore in association with:

Purchase any book by clicking on its title. If the book you want is not listed, click this link to Barnes & Noble direct from this Web site and earn revenue for Angioma Alliance!

 


Out of the Blue: One Woman's Story of Stroke, Love, and Survival
  

From the Publisher

In 1987, award-winning filmmaker Bonnie Klein suffered a catastrophic cavernous angioma hemorrhage that changed her life forever. Out of the Blue (formerly titled Slow Dance) is the candid, moving story of her struggle, first to survive and regain her strength, and finally to adapt to life with a disability. The author chronicles her fight to get "back to normal" and the tremendous adjustment she and her family have had to make in a world still largely ignorant of its disabled population.


 
Click Here

 


Spinal Vascular Malformations, Vol. 4
 

Annotation

This book is part of the four-book cerebrovascular series. The first three volumes cover Cavernous Malformations, Dural Arteriovenous Malformations, and Giant Intracranial Aneurysms. This volume presents the historical perspective and evolution of our current understanding of vascular malformations that involve the spinal cord. The anatomy, classification, diagnostic imaging, and treatment options, including both surgical and endovascular management, for spinal dural arteriovenous fistulas type II gliomas arteriovenous malformations, cavernous malformations, intradural perimedullary spinal cord arteriovenous fistulas, and juvenile and diffuse spinal arteriovenous malformations are detailed. The contributing authors are the recognized experts in the management of spinal vascular malformations.

Click Here

 


Brain Aneurysms and Vascular Malformations
 

From the Publisher

It is estimated that up to one in twenty individuals have a brain aneurysm. When a brain aneurysm ruptures, the chance of fatality exceeds 50%. This book provides a review of aneurysms as well as other disorders of the blood vessels of the brain including arteriovenous malformations, cavernous malformations, capillary telangiectasias, and venous angiomas. What are they? How are they diagnosed? How do you fix them? When do they need to be fixed? As modern medicine evolves, more people are finding out they have an aneurysm or vascular malformation, and newer, state-of-the-art options for diagnosis and treatment are becoming available. Until now, no comprehensive material has been written specifically for patients with these complex problems to help them make informed decisions about their care. This book empowers patients and family members by providing a “nuts and bolts” guide to these disorders including a thorough review of their diagnosis and treatment.

There are only 12 pages in this book about cavernous angiomas.

Click Here

 


Special Kids Need Special Parents:
A Resource for Parents of Children with Special Needs
 

From the Publisher

Parents of children with special needs face unique emotional and practical challenges that are seldom addressed by the medical community. In Special Kids Need Special Parents, Judith Loseff Lavin-herself the parent of a child with special needs-draws on interviews with health care professionals, nationally recognized authorities, and other parents to give readers the answers, advice, and comfort they crave.

 


* Coping with chronic pain, sleep problems, and frequent hospitalizations
* Dealing with feelings of grief and anger
* Choosing a therapist
* Finding suitable, reliable childcare
* How to cope with teasing
* The impact a child with special needs can have on a marriage, siblings, and grandparents
* Finding cosmetic, prosthetic, and orthotic help
* and more

An unflinching look at the multiple challenges of raising a child with special needs...a wealth of useful information. (Adele Faber, co-author of How to Talk So Kids Will Listen and Listen So Kids Will Talk)

A wise and helpful book written by someone who knows what needs to be said and has earned the right to say it. (Rabbi Harold S. Kushner, author of When Bad Things Happen to Good People)

Author Bio: Judith Loseff Lavin has written for the Chicago Sun-Times and many magazines. A graduate of Northwestern University with a degree in secondary teaching, Ms. Lavin is involved with several organizations that promote the welfare and progress of children with special needs.

Click Here

 


Growing up with Epilepsy: A Practical Guide for Parents
 

Synopsis

Blackburn, a pediatric neuropsychologist at St. Louis Children's Hospital, show parents how to support social development, advocate for a child with epilepsy in the educational system, and provide effective discipline. Early chapters present essential information on understanding epilepsy, behavior management, and school programming. The rest of the book concentrates on developmental stages as they are affected by the effects of epilepsy on social development. Annotation ©2003 Book News, Inc., Portland, OR

Click Here

 


Dipped into Oblivion

Synopsis

This is a memoir of a young woman's experience with a cavernous angioma in the medulla oblongata, a part of the brainstem.  It is a very well written account of her experience of her symptoms, her emotional struggles, and her surgery (which was performed by Dr. Robert Spetzler at the Barrow Neurological Institute, Phoenix, AZ).  This book is available only in the United Kingdom, but can be imported to the US with an additional shipping fee.

Click Here

 

 


Cavernous Malformations

Synopsis

 

The massive convergence of information about cavernous malformations has been synthesized in this volume by experts in the field of pathology, neuroradiology and neurosurgery. Cavernous Malformations represents state-of-the-art knowledge about this lesion and the spectrum of opinion about its nature, clinical behavior and management strategies.

Highlights of Cavernous Malformations include:

  • Definition and pathologic features
  • Epidemiology
  • Diagnostic imaging
  • Epilepsy
  • Hemorrhage
  • Conservative management
  • Surgical intervention
  • Microsurgical treatments
  • Spinal cavernous malformations
  • Pediatrics
  • Radiotherapy
  • And more!

Click Here

 

 


Be Prepared

Synopsis

 

The Complete Financial, Legal and Practical Guide to Living with Cancer, HIV, and Other Life-Challenging Conditions.

 

 

Click Here