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Take Action!
Advocating for increased US governmental funding for cerebral
cavernous malformation research is an important way that you can
help work toward a cure. Angioma Alliance chair Ken Ruggles
recently wrote a letter to Senator Ted Kennedy in an effort to
increase awareness of cavernous angiomas and raise support for
research that could lead to a cure for this illness that affects
more than a million Americans. Personalize this
template letter
and send to Senate and House members by fax (when
possible), e-mail or postal mail. Joyce Gonzales has customized
this letter for use by those with the
common Hispanic mutation.
Or, take their lead and write your own.
You can find contact information for your representatives
online.
For the U.S. Senate:
www.senate.gov/general/contact_information/senators_cfm.cfm
and
the U.S. Congress:
www.house.gov/house/MemberWWW.shtml
We’ve included a list of
Senators and
Representatives on the Senate Health, Education, Labor and
Pensions Committee and on the House Appropriations Committee so
that you may focus on those with the most influence on research
funding.
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