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The Angioma Alliance website is adding a Stories section.
As a permanent part of the site, we would like to publish
the experiences that you have had with cavernous angioma.
Sharing and reading stories can be a way to give or get
support, to share information, and to express feelings.
If you have been affected by cavernous angioma personally or
as a family member or friend, please consider submitting
your experiences for our site. Your story may include
whatever aspects of the illness experience you feel have
been important to you. This is not limited to, but could
include the story of your surgery experiences, symptoms and
diagnosis, recovery and disability experiences, parenting or
spouse experiences, workplace or community issues, or health
care provider/patient relationships.
We will publish the stories as they are submitted, editing
for spelling but not for grammar. We will contact you if we
feel we need to edit for medical accuracy, and will not do
so without your permission.
To submit your story, please email it with your name to
stories@AngiomaAlliance.org. Your story will be published
with your name. Please let us know whether you would like
your email address to appear with your story. This would
allow readers to make contact with you with questions or to
share their experiences. You may include a digital picture
of yourself, if you like. Also, please consider sending
periodic updates to your story to
storyupdate@AngiomaAlliance.org.
These will be added to your original story with the date of
submission. You will be able to find your story on the
Stories page under the Community main menu selection.
We encourage international submissions and can accept
stories written in Spanish. If you are writing from outside
of the US, it would be helpful for you to include your
country somewhere in your narrative. Spanish stories will
remain in their original language and we also may translate
the story for inclusion on our English page.
Thanks so much for your willingness to participate!
Connie Lee
President
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